Rare Disease Day

What is rare disease day?

Rare Disease Awareness Day, also known as Rare Disease Day, is an international observance held annually on the last day of February. The event aims to raise awareness about the challenges faced by people with rare diseases, their families, and the organizations that serve them. Rare Disease Day also highlights the need for increased research and funding for the development of treatments and cures for rare diseases. The goal of the day is to bring attention to the impact of rare diseases on patients and their families, and to advocate for greater support and resources for the rare disease community.

What can we do on rare disease day?

There are several ways to participate in and support Rare Disease Day:

• Raise Awareness: Share information about Rare Disease Day and the challenges faced by people with rare diseases on social media, through blog posts, or by organizing events to raise awareness in your community.

• Show Support: Wear a ribbon or other symbol to show your support for the rare disease community and help raise awareness.

• Donate: Support organizations that work to improve the lives of people affected by rare diseases.

• Participate in Events: Attend local or online events that support Rare Disease Day, such as walks, runs, or other fundraising events.

• Advocate: Contact your elected representatives to advocate for increased funding for research and treatment of rare diseases, and for better access to medical care for those affected.

• Get involved: Volunteer or donate time, skills, or resources to organizations that support people with rare diseases and their families.

Remember, every action counts, and every effort made to raise awareness and support the rare disease community can make a difference in the lives of those affected by these conditions!

Does anything happen near me?

Check here: https://www.rarediseaseday.org